I just stumbled on this.
For some reason I was unable to leave a comment but there was a few things that got under my skin about the post. The author was trying to show how empathetic she was and really see someone for who they are despite their disability but then she goes on to label the person by their disability IE "27-year-old hydrocephalic". A DISABILITY IS SOMETHING SOMEBODY HAS IT IS NEVER WHO THEY ARE. (Sorry my pet hate). If you truly wish to see how incredible and phenomenal a person is than look past their diagnoses.
Parents place their children with disabilities in institutions do so out of complex circumstances. I don't think you can understand the decision making process around placing a child or adult with a severe impairment in an institution until you have had to make it yourself. I think it is extremely shortsighted to view the placing of a disabled child in an institution as purely a cruel and unthinking act by the parent/s.
The government and community at large play a substantial and critical role for parent's to feel supported with raising a child with a disability. Anyone who is raising a child with a disability knows of the considerable lack in resources, practical support, respite, childcare and schooling options, parental income support, community access ect. When the support is not there from government policy and action and the community as a whole some parents unfortunately have extremely limited options in caring for a child with high support needs. We can not pass judgements on these parents unless we have had to walk in their shoes and experience the significant difficulties in day to day life that they have had to face. But it is obvious that some just see parent's as making heartless decisions and don't look outside the box to see what has lead them to have to make the decision they have had to.
The one thing that I do agree with is that it is the parent's loss. Don't be so ignorant not to think that many of those parents have not had to deal with considerable grief over their situation. There is loss all around, for the child, the parents, the family and the wider community. Yes, it is very easy to sit back and judge these parent's for their decision but not so easy to go forward and campaign for a dramatic increase in funding and resources that are required for some children and adults with a severe disability to live with their families in their communities.